The UK Myotonic Dystrophy Patient Registry
To help advance the research and development of treatment, therapies and care for all those diagnosed with myotonic dystrophy.
- More information is available for patients and their families here.
- More information is available for professional users here
There are currently 803 patients registered in this database.
The registry is funded by the Muscular Dystrophy UK and Myotonic Dystrophy Support Group with support from the TREAT-NMD Alliance and MRC Centre for Neuromuscular Disease.
