The UK Myotonic Dystrophy Patient Registry

To help advance the research and development of treatment, therapies and care for all those diagnosed with myotonic dystrophy.

There are currently 803 patients registered in this database.

The registry is funded by the Muscular Dystrophy UK and Myotonic Dystrophy Support Group with support from the TREAT-NMD Alliance and MRC Centre for Neuromuscular Disease.


Muscular Dystrophy UK Myotonic Dystrophy Support Group

MRC Center for Neuromuscular Diseases