The UK Myotonic Dystrophy Patient Registry
To help advance the research and development of treatment, therapies and care for all those diagnosed with myotonic dystrophy.
- Please read the registration user guide for step-by-step instructions on registering yourself or someone you care for as a UK based Myotonic Dystrophy patient.
- More information is available for patients and their families here.
- More information is available for professional users here
There are currently 850 patients registered in this database.