The UK Myotonic Dystrophy Patient Registry
To help advance the research and development of treatment, therapies and care for all those diagnosed with myotonic dystrophy.
- Please read the registration user guide for step-by-step instructions on registering yourself or someone you care for as a UK based Myotonic Dystrophy patient.
- More information is available for patients and their families here.
- More information is available for professional users here
There are currently 850 patients registered in this database.
The registry is funded by the Muscular Dystrophy UK, the Myotonic Dystrophy Support Group and Cure DM with support from the TREAT-NMD Alliance and MRC Centre for Neuromuscular Disease.
Coordinated by:
Funded by:
Affiliated to:
