Operator

This registry is operated by the John Walton Muscular Dystrophy Research Centre, Newcastle University.

Curator of the Myotonic Dystrophy Patient Registry

Ben Porter

Ben.Porter.please.remove@newcastle.ac.uk

IT

Marcel Heidemann

Marcel Heidemann

Marcel Heidemann is the software engineer for this and the other patient registries for rare neuromuscular diseases which are organised by the John Walton Muscular Dystrophy Research Centre and the Friedrich-Baur-Institute in Munich. Please contact him if you have any technical questions or interest in this software.

marcel.heidemannplease.remove@lrz.uni-muenchen.de
Profile Marcel Heidemann